Lewes dad raises nearly £15k for Chailey Heritage Foundation

In honour of his late daughter Luna-Rose, who was born with such a rare genetic disorder it doesn’t have a name, local resident Matthew Vince is taking on the Brighton Marathon in April for Chailey Heritage Foundation.


Luna-Rose was born non-verbal with low motor skills, epilepsy and global development delay and sadly passed away at just three years of age. Matthew has been able to turn pain into power and raise £14,189 (at the time of writing) for the Chailey Heritage Foundation and Aquamovers who supported Luna-Rose and the family during tough times.


Aquamovers is a privately funded group at Chailey Heritage School, led by Physiotherapists and Speech / Language Therapists that specialise in pre-school disabled children. Here the children and parents get to interact with each other, get to use specialist equipment, enjoy a different sensory story each week and receive expert advice learning new techniques to help improve cognitive and physical development.


Speaking to us at CommunityAd, Matthew explained: “Chailey Heritage Foundation and Aquamovers played a massive part it our lives. Not only did it help Luna with getting her moving in the hydrotherapy pool for her physio. It helped parents like ourselves meet other parents it similar situations and was a massive support network. It’s a lonely and scary place having a child with disabilities but charities like this make a big difference.

“I heard Aquamovers were doing a fundraising program as it needed more money so I thought what a great time to run the marathon in memory of Luna and to raise money for an amazing charity she used to use.

“The furthest I’ve ever run before taking on this challenge was 4 miles. I’m definitely not a runner or enjoy running so it’s definitely a challenge. I would like to run under 4 hours 30 mins. Also, I have my two friends Leon Collen and Hugo Porpora and my brother Joel Vince running with me so that helps massively.

“To the people who have donated we cannot thank you enough. The money is really making a difference to families’ lives who use these services. Anyone who can give anything we will be so grateful.

“We are not stopping after the marathon with fundraising. We have plenty of other ideas and challenges to look forward to in order raise money for charities.”


To find out more or donate to Matthew’s touching fundraiser make your way over to his JustGiving page.

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